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The Persistence of Race in Biotech Patenting and Drug Development Jonathan Kahn, J.D., Ph.D.Associate Professor of Law, Hamline University School of Law Jonathan Kahn is Associate Professor of Law at Hamline University School of Law. He holds a Ph.D. in U.S. History from Cornell University and a J.D. from the Boalt Hall School of Law, University of California, Berkeley. His current research focuses on the intersections of law, race, and genetics, with particular attention to how regulatory mandates intersect with scientific, clinical and commercial practice in producing and classifying genetic information in relation to racial categories. He has received research grants from the National Institutes of Health and the National Endowment for the Humanities. He is the author of Budgeting Democracy: State Building and Citizenship in America, 1897-1928 (Cornell U. Press, 1997) and numerous articles on law, genetics, and identity, including "How a Drug Becomes ‘Ethnic': Law, Commerce and the Production of Racial Categories in Medicine," in the Yale Journal of Health Policy, Law & Ethics, and "Race-ing Patents/Patenting Race: An Emerging Political Geography of Intellectual Property in Biotechnology," in the Iowa Law Review. His article, "Race in a Bottle," appeared in the August, 2007 issue of Scientific American. Much of his work can be viewed at http://ssrn.com/author=180388. |
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| Examining the Promise of Personalized Genomic Medicine: An Anthropological Account  Barbara A. Koenig, Ph.D.Professor of Medicine and Biomedical Ethics, Mayo College of Medicine; Co-Director, Program in Professionalism & Bioethics Barbara A. Koenig, Ph.D., an anthropologist who studies contemporary biomedicine, is Professor of Medicine at the College of Medicine, Mayo Clinic, and Faculty Associate at the Center for Bioethics, University of Minnesota. She serves as Co-Director of Mayo Clinic's Program in Professionalism and Bioethics. Previously, she served as Executive Director of Stanford University's Center for Biomedical Ethics, where she helped establish the Stanford Program in Genomics, Ethics, and Society, an endeavor devoted to multidisciplinary research and policy analysis of the challenges engendered by molecular genetics. At Stanford she conducted in-depth analyses of the social, ethical, and legal implications of DNA testing for breast cancer genes, as well as genetic testing for Alzheimer disease. During the Clinton administration Koenig served on the Department of Health and Human Services Secretary's Advisory Committee on Genetic Testing, a group charged with making recommendations about federal oversight of testing in the U.S. Koenig's NIH-funded research examines the ethical and policy implications of emerging knowledge in the genetics and neurobiology of addiction and a study of human subjects protections in DNA biorepositories linked to electronic medical records. She was awarded a grant from the Greenwall Foundation to investigate DNA "identifiability" as a central issue in personalized medicine. Koenig's Mayo Clinic research team is currently collaborating with the University of British Columbia in a study of deliberative community engagement as a means of engaging the public about establishing DNA biobanks. Her most recent book is a collection of essays (co-edited with Sandra Lee and Sarah Richardson) titled, Revisiting Race in a Genomic Age, Rutgers University Press (2008). |
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Research 2.0: Social Networking and Personal Genomics Sandra Soo-Jin Lee, Ph.D.Senior Research Scholar, Stanford Center for Biomedical Ethics, Stanford University Medical School Sandra Soo-Jin Lee, Ph.D., is a medical anthropologist who studies race, ethnicity and culture in science, technology and biomedicine. Dr. Lee has conducted research on the social and ethical issues related to the DNA sampling of human populations and scientific practices in identifying group difference. Her research projects include, The Meaning of Race in the New Genetics, and Distributive Justice and Human Genetic Variation Research, through which she investigates population based biobanking and the emerging field of pharmacogenomics and their impact on the public policy goal of eliminating health disparities among racially and ethically identified populations. Dr. Lee is currently pursuing research on direct-to-consumer personal genomics and social networking. Dr. Lee's awards include a Rockefeller Foundation Humanities Fellowship, National Institutes of Health National Research Service Award, and a National Human Genome Research Institute Career Development Award in Research Ethics. She is co-editor of Revisiting Race in a Genomic Age (Rutgers University Press; Aug 2008) and is currently working on a book entitled, Race, Justice and the New Genetic Sciences (under contract, Routledge Press). Dr. Lee is a Senior Research Scholar at the Center for Biomedical Ethics at Stanford University Medical. Dr. Lee is Co-Chairperson of the IRB at the Northern California Cancer Center and serves on the Consultation and Oversight Group of the International HapMap Collection at the Coriell Repositories. Dr. Lee received her undergraduate degree in Human Biology from Stanford University and her doctorate in Medical Anthropology from the joint program at the University of California, Berkeley and San Francisco. |
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Will Directed Evolution Destroy Humanity, and If So,
What Can We Do About It? Maxwell J. Mehlman, Ph.D.Arthur E. Petersilge Professor of Law, Director, The Law-Medicine Center, Case Western Reserve University School of Law; Professor of Bioethics, Case Western Reserve University School of Medicine Maxwell J. Mehlman is Arthur E. Petersilge Professor of Law and Director of the Law-Medicine Center, Case School of Law, and Professor of Biomedical Ethics, Case School of Medicine. He received his J.D. from Yale Law School in 1975, and holds two bachelors degrees, one from Reed College and one from Oxford University, which he attended as a Rhodes Scholar. Prior to joining the Case faculty in 1984, Professor Mehlman practiced law with Arnold & Porter in Washington, D.C., where he specialized in federal regulation of health care and medical technology. He is the co-author of Access to the Genome: The Challenge to Equality; co-editor, with Tom Murray, of the Encyclopedia of Ethical, Legal and Policy Issues in Biotechnology; co-author of Genetics: Ethics, Law and Policy, the first casebook on genetics and law, now in its second edition; and author of Wondergenes: Genetic Enhancement and the Future of Society, published in 2003 by the Indiana University Press. His new book, "The Price of Perfection: Individualism and Society in the Era of Biomedical Enhancement," will be out this spring from the Johns Hopkins University Press. He is the principal investigator on a grant from the National Institutes of Health entitled "Protecting Human Subjects in Genetic Enhancement Research," and a co-investigator on two additional NIH-funded grants. |
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| Genetic Discrimination in the Workplace: Lessons from the Past and Concerns for the Future  Laurie A. Vasichek Senior Trial Attorney, U.S. Equal Employment Opportunity Commission Laurie Vasichek is a Senior Trial Attorney with the U.S. Equal Employment Opportunity Commission in Minneapolis, MN. Vasichek was the EEOC attorney on its groundbreaking lawsuit challenging an employer conducting genetic tests on its employees under the Americans with Disabilities Act. |
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